Information for Caregivers

Not only do caregivers have to provide significant time and effort to help those affected with IBMPFD, the very act of providing care creates problems for the caregivers, both physical and mental.  The information on this page is intended to assist caregivers in finding solutions to help with providing care as well as suggestions for dealing with their resulting problems.

Since IBMPFD is adult onset, many of those affected will be able to use Medicare.  Medicare Caregivers web site provides information for caregivers regarding use of Medicare, care options, and financial issues.

There are support organizations, some affiliated with religious organizations, that may provide some kinds of assistance.  One should check for those types of organizations in one's geographic area.

Caregivers are requested to share their experiences with others by posting messages on the bulletin board in the caregiver forum.

This page is a "work in progress" so suggestions for contents are needed and most welcome.

There were some articles in Quest regarding caregiver issues, I will try to get links to those articles.