Approved Treatments for IBMPFD

While there are no "approved treatments" for the inclusion body myopathy or frontotemporal dementia (although some non-approved activities may help, see sections on nutrition and exercise), there are approved treatments for Paget's Disease of the bone.

Use the following link to read a news release on the latest approved prescription drug for Paget's Disease: Reclast.

The following link contains some more information about Reclast:  http://www.reclast.com/index.jsp?usertrack.filter_applied=true&NovaId=7852773784372053918.

Additional information about the uses of Reclast can be found at: http://www.drugs.com/pro/reclast.html.

Check with the prescribing doctor for the exact parameters, something like a dose is 5mg IV with calcium and vitamin D supplements for two weeks prior.

Treatments for Symptoms

While symptoms and rates of degeneration vary significantly between affected persons (even siblings with the identical mutation), some of the symptoms can be treated with nutrition, exercise, and equipment. See those sections for specifics about some items that have worked (or not worked) for one or more affected parties.