MDA's Home Page     http://www.mda.org MDA's Donate Area     https://secure.mdausa.org/Gift.aspx Information about particular diseases     http://www.mda.org/disease Publications like Quest, The MDA/ALS Newsletter, and informative brochures     http://www.mdausa./publications Research     http://www.mda.org/research

The hIBM/ARM web site contains information about a similar mutation, with similar symptoms to IBMPFD.

 There are a number of universities that are performing research into various genetic diseases, as well as the basics of what and how DNA works.  In some cases, one can participate in the research, e.g., provide DNA, muscle samples, which helps facilitate the research. Go to the research page for more information.

Dr. Virginia Kimonis, University of California (Irvine):  vkimonis@uci.edu  The web site for Dr. Kimonis is: http://www.ucihs.uci.edu/pediatrics/drkimonis/index.shtml

Drs. Kimonis and Watts have posted a paper that is a very comprehensive overview of IBMPFD:  http://www.geneclinics.org/query?dz=ibmpfd

Dr. Charles Smith, University of Kentucky (Lexington): csmith@mri.uky.edu

Dr. Chris Weihl, Washington University (St. Louis): weihlc@neuro.wustl.edu  The associated web site is http://www.neuro.wustl.edu/neuromuscular/index.html A link to the NEUROMUSCULAR DISEASE CENTER at Washington University, St. Louis, MO  USA

The University of Kentucky (Lexington) and the University of California, Davis are also doing research  I had a brain MRI performed at UK regarding the frontotemporal dementia aspect; UC Davis performed some checks on my heart.

The following links are to sites on the web that contain educational information.  In many cases the initial link will connect to other sites that contain additional information.

http://www.jamesbootcamp.com/articles/an-overview-of-dna.html A nice overview of DNA and associated structures, mechanisms, and engineering.

http://molvis.sdsc.edu/dna/index.htm  An animated tutorial (high school level) on DNA structure.

http://www.blc.arizona.edu/Molecular_Graphics/DNA_Structure/DNA_Tutorial.HTML  An introductory to DNA structure part of an introductory biology course.

http://www.johnkyrk.com/DNAanatomy.html  An animated outline of DNA structure.

http://www.accessexcellence.org/RC/VL/GG/structure.html  An illustration of the double helical structure of the DNA molecule.

The following links contain information regarding Paget's Disease of Bone:  http://arthritis.about.com/od/pagets/Pagets_Disease_of_Bone_Cause_Diagnosis_Symptoms_Treament.htm;

http://adam.about.com/encyclopedia/infectiousdiseases/Pagets-disease.htm; http://arthritis.about.com/od/pagets/p/paget.htm.