Research Projects
I. Various institutions are doing research into the causes, treatments, and cures for IBMPFD. This page will identify and enable you to link to various pieces of information necessary to participate in the research or to obtain more information about the research and research results.
The following links are for an effort headed by Doctors Charles Smith of the University of Kentucky (Lexington) and Virginia Kimonis of the University of California (Irvine) into some of the aspects of the frontotemporal dementia associated with IBMPFD. The links take you to Word documents.
UK Project Description A description of the goals of this research headed by Dr. Charles Smith at the University of Kentucky. Imbedded in the description are links to various other pertinent documents.
For further information, please contact Barbara Martin, Study Coordinator at
Barbara J. Martin, M.A. Research Coordinator Neurology-MRISC28 Davis-Mills Bldg. 800 Rose Street Lexington, KY 40536-0098
phone: 859.323.0494 fax: 859.323.1068
E-mail: barbara.martin@uky.edu
II. Survey Form: The attached survey form (IBMPFD Survey Form) is intended to provide quantitative information about the symptoms and onset ages for those affected with IBMPFD. This data can then be statistically analyzed to further aid the research to determine treatments and a cure for IBMPFD. Please send completed forms to both doctors identified below:
E-mail: weihlc@neuro.wustl.edu
Virginia Kimonis, MD
Chief, Division
of Genetics and Metabolism
Professor of
Pediatrics
University of
California Irvine Medical Center
101 The City
Drive South, ZC4482
Orange CA 92868
Tel: (714)
456-2942, Fax:(714) 456 5610
Pager (714) 506
2063
Email:
vkimonis@uci.edu